Cardio Apt

Olivia went to the cardio last week. She was going every 6 months but now they bumped her to once a year. That is great news. They are just watching her and the growth of her heart. Its the same since she was born almost 3 yrs ago. Yeah!

New Website

I have started a new website for Jacobsens Syndrome. I would love for you to visit us and join us. My site is www.jacobsenssyndromeawareness.com

This week...

Well this week has been great. Olivia's speech has really came along quick. She is saying stuff that we didnt even think she would be saying. She is starting to put 2-3 word sentences together. The teacher is so amazed at how she is doing.

Things are going great!

Everything seems to be going great. No nose bleeds knock on wood. She has hit her nose a few times and I run to go see if its bleeding. So it's been great that it hasnt been bleeding. She doesnt have as many colds as she had last year. Ill keep everyone updated.

New Findings...

Well we had to take Olivia to get her DDAVP (special medicine to see if it will help her bleeding). I will know in 10-14 days if the medicine works if it does then it will be medicine that she will get if she has bad bad nose bleeds, dental work, 0r when she gets her period. She does have a mild mild case of Von Willebrand Disease. Nothing serious though.