This week...

Well this week has been great. Olivia's speech has really came along quick. She is saying stuff that we didnt even think she would be saying. She is starting to put 2-3 word sentences together. The teacher is so amazed at how she is doing.

Things are going great!

Everything seems to be going great. No nose bleeds knock on wood. She has hit her nose a few times and I run to go see if its bleeding. So it's been great that it hasnt been bleeding. She doesnt have as many colds as she had last year. Ill keep everyone updated.

New Findings...

Well we had to take Olivia to get her DDAVP (special medicine to see if it will help her bleeding). I will know in 10-14 days if the medicine works if it does then it will be medicine that she will get if she has bad bad nose bleeds, dental work, 0r when she gets her period. She does have a mild mild case of Von Willebrand Disease. Nothing serious though.

Time for a New Year!!

I hope this new year brings lots of great times and healing. This year has not been so bad for Miss Olivia. She goes to the Hemotoligist this week to see about her bleeding disorders. She has been healthy other then that. She does go back to the Cardio in Feb.. I hope they have some great news for us. She is such a strong little girl and is surprised at how she is doing as far as her development.

Tis the Season..

Well we are battling colds again with Olivia. She has been on Flovent Inhaler, Singular, and Amox now they have her on Omnicef. She is sick from the time it gets cold till Spring. It drives me nuts. I guess being a cardiac baby doesn't help either.

She is also on Iron Supplements and Multi Vitamin. Her platelets are low and she is anemic.

The Kewer's

We are parents of 3 wonderful kids. We have been married for almost 9 years. Our youngest daughter Olivia is two and she was diagnosed with Jacobsens Syndrome when she was born. Olivia has really changed us. She is wonderful to have around. She has been through so much in her little life. She does have cardiac defects, learning disabilities, small bleeding problems, and some minor things. She does get lots of help from her in home teachers. She is catching up so fast on her learning. We love to find others with the same syndrome as Olivia. I love to learn how other kids are.